Myeloproliferative Neoplasms

A Report on Longitudinal Data on Outcomes in Myeloproliferative Neoplasms Patient Registry

By

Megan Garlapow, PhD

Publish Date April 5, 2019

Researchers review the myMPN patient registry and provide an analysis of the data being collected by the registry, as well as future goals.

Myeloproliferative Neoplasm Symptom Burden High for UK Patients, Physicians

By

Susan Moench, PhD, PA-C

Publish Date March 19, 2019

An analysis of responses to the 2017 Landmark Survey revealed that disease-burden symptoms of MPN is challenging for both patients with the disease and their physicians.

Long-Lived Patients With Primary Myelofibrosis: What Predicts a 20+ Year Survival?

By

Susan Moench, PhD, PA-C

Publish Date March 11, 2019

A retrospective study identified prognostic factors for long survival — 20+ years — in patients with primary myelofibrosis.

Survey Demonstrates Relationship Between Symptom Burden, Medical Disability Leave Among Myeloproliferative Neoplasms

By

Susan Moench, PhD, PA-C

Publish Date February 15, 2019

A survey-based study investigated the relationship between symptom burden and incidence of medical disability leave among patients with MPNs.

Prevalence, Severity of Psychological Distress Higher in Patients Coping With Philadelphia-negative Myeloproliferative Neoplasm

By

Joyce Pagan

Publish Date January 22, 2019

Researchers sought to determine the prevalence and severity of anxiety and/or depression among patients with Philadelphia-negative MPNs.