RESOURCES FOR HEALTHCARE PROVIDERS AND PATIENTS

A wealth of information is available on the Internet on iron overload, beta-thalassemia, sickle cell disease, myelodysplastic syndromes, and related subjects both for healthcare providers and for patients. Programs and organizations also exist online to assist qualified patients in paying for their medications. Here is a sampling: 

FINANCIAL ASSISTANCE
Exjade® Patient Assistance and Support Services(EPASS™) Complete Care

http://www.us.exjade.com/patient/epass-completecare.jsp
Novartis Patient Assistance Foundation
http://www.pharma.us.novartis.com/about-us/ourpatient-caregiver-resources/paf-enrollment.jsp
1-800-277-2254
Patient Assistance Now
http://www.patientassistancenow.com


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IRON OVERLOAD
Be Transfusion Smart. Be Iron Smart

http://www.betransfusionsmart.com
EXJADE® Web site
http://www.us.exjade.com
Iron Overload Nurse Ambassador Program
www.ironoverloadnurses.com
Iron Toxicity.com
http://www.irontoxicity.com

THALASSEMIA
Cooley’s Anemia Foundation

http://www.cooleysanemia.org
Diamond Blackfan Anemia Foundation
http://dbafoundation.org
March of Dimes
http://www.marchofdimes.com
National Heart, Lung and Blood Institute
http://www.nhlbi.nih.gov/health/dci/Diseases/Thalassemia/Thalassemia_WhatIs.html
Thalassaemia International Federation
http://www.thalassaemia.org.cy

SICKLE CELL DISEASE
American Sickle Cell Anemia Association (ASCAA)

http://www.ascaa.org
International Association of Sickle CellNurses & Physician Assistants
http://www.iascnapa.org
National Heart, Lung and Blood Institute
http://www.nhlbi.nih.gov/health/prof/blood/sickle/index.htm
Sickle Cell Disease Association of America
http://www.sicklecelldisease.org
Sickle Cell Information Center
http://www.scinfo.org
SickleCellKids.org
http://www.sicklecellkids.org

MYELODYSPLASTIC SYNDROMES (MDS)Aplastic Anemia & MDS International Foundation
http://www.aamds.org
Leukemia and Lymphoma Society
http://www.leukemia-lymphoma.org
Myelodysplastic Syndromes Foundation
http://www.mds-foundation.org
National Cancer Institute
http://www.cancer.gov/cancertopics/pdq/treatment/myelodysplastic/Patient